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Moving Forward – ‘Transforming Care’ for people with Learning Disabilities in Norfolk and Waveney

12th Mar 2018

People with learning disabilities in Norfolk and Waveney are at the forefront of designing the care available to help them live fulfilling, supported lives in the community.

Norfolk and Waveney’s Transforming Care Partnership, one of 44 across England, has worked with NHS England to create films documenting the experience of local people accessing care in specialist learning disability hospitals.

These stories present the reality of the challenges people with learning disability face, and also the support and opportunities they have been able to access through the multi-agency work of the Transforming Care Partnership.

The films are being shared a week before Norfolk and Waveney’s Transforming Care Conference, which takes place on Wednesday 14th March and has been designed and developed by local ‘Experts by Experience’ of learning disability services.

Ricky Nicholson and Andy Walton, who have experience of living in secure hospitals in Norfolk, outline the aim of the films: “We worked with NHS England and filmmakers to tell our stories of what it was like living in a hospital, and how moving back into the community was a big change for us. We also gave our views about how medication can affect our behaviour and about people being on the most appropriate medication and dosage.”

“As ‘Experts by Experience’, we think it is really important for our lives to be at the centre of what Transforming Care is delivering. We hope that the films help and inspire people to understand how important it is to get the right medication at the right time, and know why they are taking it.”

The films can be viewed via NHS England’s website, and form part of a series of case studies under the #CareTransformed banner:

Stopping over-medication: Ricky and Andy’s story: https://www.england.nhs.uk/publication/stopping-over-medication-ricky-and-andys-story/ 

Daniel moves to supported living in Norwich: https://www.england.nhs.uk/publication/moving-into-my-own-home-daniels-story/

‘Transforming Care’ is a national initiative launched in 2016, jointly coordinated by NHS England and the Association for the Directors of Adult Social Services (ADASS).

The Norfolk and Waveney Transforming Care Partnership is made up of Clinical Commissioning Groups, NHS England, Norfolk and Suffolk County Council, supported by experts with lived experience and providers of services.

At the start of the project in 2016, there were 47 people with learning disabilities in hospital facilities across Norfolk and Waveney. Over the last two years, more than 71 people have been helped to live in the community, and currently 16 people with learning disabilities are in secure hospital accommodation.

Alison Leather, Director of Quality Assurance for NHS North Norfolk and NHS South Norfolk CCGs and Deputy Senior Responsible Officer for Norfolk and Waveney’s Transforming Care Partnership, says: “Since the start of the programme, we have put in place a new community based services for people with learning disabilities, and strengthened the crisis support available to people and their families.

“We have also put in place the new Clinical Treatment Review process to make sure a multi-disciplinary team works with people to take the best decisions about their care and support, and have created a way to identify people who may be at risk of admission to hospital so we can support to stay in their own homes.”

Over the next year, the Partnership will continue to focus on :

  • working with providers of accommodation and support to make sure people can have access to homes which meet their needs
  • working with providers of residential care to make sure paid carers  have the right skills and resources to support people when their needs increase so people can stay in their own homes
  • putting in place a plan to ensure that we have skilled workforce for the future
  • making sure people receive person-centred support so they can live as independently as they are able
  • ensuring our child and young people’s services are addressing the needs of this group.

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